A commitment to partnership in research with people with lived experience
People with lived experience have critical insights that make research relevant to their families and communities. But partnerships take time, effort, and trust to flourish.
Tools for creating and nurturing meaningful research partnerships
From compensation to ethics to project management and evaluation, the resources listed below will help guide researchers and people with lived experience in working together in research.
Lived Experience in Health and Health Systems Research
This comprehensive 2.0 guide to how and why to structure research partnerships touches on all aspects of a meaningful and trusting partnership between researchers and people with lived experience.
Standard of Compensation for People with Lived Experience: Researcher Edition
You need to pay your lived experience partners! But sometimes knowing that is a lot easier than doing that. That’s why we wrote this practical guide on how to plan for and execute compensation for lived-experience partners.
Standard of Compensation for People with Lived Experience: Lived Experience Edition (English)
Partners should understand how and how much they will be paid for their work on a research project. This guide helps you understand your pay and have a conversation about any concerns you might have about being paid.
Standard of Compensation for People with Lived Experience: Lived Experience Edition (Spanish)
Socios deben entender cómo y cuánto se les pagará por su trabajo en un proyecto de investigación. Esta guía le ayuda a comprender su salario y a conversar sobre cualquier inquietud que pueda tener sobre su pago.
Blog
Hear from experts in lived experience partnerships, including community engagement, family and patient engagement, and more.
Resources
Resources to help you craft your partnerships, including training programs, literature, and websites.
Contact Us
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Lived Health Experience in Research 